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Warriors

Julia - Wig Assistance

 

I discovered the Alayna Jayne Foundation (AJF) when Alayna herself commented on one of my TikTok videos. I decided to "shoot my shot" and apply for assistance, and I was so relieved when I was selected.

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My new wig allows me to feel like "Julia" again. I no longer have to worry about the looks people might give me for being bald or having short hair; it has given me the confidence to go outside without a hat.

 

Julia - Diagnosed in​ December 2017

Location: New York, USA

Cancer Type: B-cell Acute Lymphoblastic Leukemia

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Nichelle - BMT, Room Makeover, Daisy Retreat Attendee & Wig Assistance

 

We first learned about the Alayna Jayne Foundation through a social worker. Nichelle found a deep connection to Alayna’s story, having gone through a bone marrow transplant too, Nichelle was able to draw inspiration from their shared journey.

 

The items we received from the AJF wishlist played a meaningful role during the hospital stay. Having personal items, decorations and crafts helped create a more energized environment during the hospital stay and recovery. Additionally, the process was seamless, and provided much-needed support especially when extra items were needed during the stay that we had forgotten to bring. Elaine was able to assist and have them delivered for us.

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Alyssa - Wig

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Losing my hair was one of the hardest parts of my cancer journey. When I found a wig that resembled my original hair, it felt like reclaiming a piece of myself. 

 

Alyssa - 25yrs at diagnosis

Location: New Jersey, USA

Cancer Type: Hodgkin’s Lymphoma 

Chemo Regimen: ABVD

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Francesca - Cold Cap

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When I was first diagnosed and told I needed to go through chemotherapy, one of the most troubling side effects to come to terms with was hair loss. I desperately wanted to keep my hair, but knew there was almost an 100% chance I would lose all my hair.

 

Francesca - 23yrs at diagnosis

Location: New Jersey, USA

Cancer Type: Hodgkin’s Lymphoma 

Chemo Regimen: ABVD

Jess - Cold Cap

 

Last April, I was a completely normal college junior. I had just returned back from spring break in the Caribbean with my friends and was just a week away from celebrating my 21st birthday! Everything was so good before I was told I had cancer. Hearing those words, it felt like my entire world came crashing down, completely upside down. One of my first thoughts were “I’m going to have to do chemo and I'm going to lose my hair.”

 

Jess - 21yrs old at diagnosis

Location: New Jersey, USA

Cancer Type : Hodgkin’s Lymphoma

Chemo Regimen: ABVD

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Elly - Cold Cap & Daisy Retreat Attendee

 

My first interaction with Alayna's family was a FaceTime call with Alayna and her mother. Not only were they both amazing supporters throughout the entire process. They FaceTime and helped me to understand what the cold cap did.

 

Elly - 17 years at diagnosis 

Location: New Jersey, USA

Cancer Type: Hodgkin's Lymphoma

Chemo Regimen: ABVD

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Melaina - Cold Cap & Daisy Retreat Attendee

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I wanted to thank you for all your help during this difficult time with my daughter Melaina. Thanks to the Alayna Jayne Foundation you made this possible. We would not have been able to afford the cold cap to prevent her from losing all her hair.

 

Melaina - 17yrs at diagnosis

Location: New Jersey, USA

Cancer Type: Hodgkin’s Lymphoma 

Chemo Regimen: ABVD

Gianna - Cold Cap & Daisy Retreat Attendee

 

I was diagnosed with Hodgin's Lymphoma. I'm a competitive dancer and when I heard those words, I felt like everything came crashing down on me all at once. I have heard about cold caps in the past through other people who have been through cancer, but also have several friends who are close to Alayna and got me in touch with the Alayna Jayne Foundation. Knowing my hair could possibly be preserved made me feel 100 times better.

 

Gianna - 15yrs old at diagnosis

Location: New Jersey, USA

Cancer Type :Hodgkin’s Lymphoma

Chemo Regimen: ABVE-PC

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Erin - Cold Cap

 

As you can imagine in addition to all the fears and concerns regarding the diagnosis and treatment plans, the prospect of losing hair due to chemotherapy was particularly devasting to our daughter.

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Elaine and her daughter Alayna created the foundation because they saw the need particularly in the Adolescent/Young Adult cancer community for expanded access to a treatment that can potentially save the devasting side effect of chemo-induced hair loss.

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Erin - 20yrs old at diagnosis

Location: New Jersey, USA

Cancer Type: Hodgkin’s Lymphoma

Chemo Regimen: ABVE-PC

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Ava D. - Cold Cap

 

Ava and I cannot thank you enough for giving Ava the opportunity to use the Paxman cold cap.  Our doctor and nurses were not really familiar with its use in the pediatric unit, and it was YOUR advocacy that convinced them to allow Ava, who was 16 at the time of diagnosis and treatment, to use the cold cap.  Without you providing so much information to the hospital staff, she probably would not have been able to use it!  Our family also probably wouldn’t have been able to afford the cold cap, had the foundation not provided it to us, free of any charge.  

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Ava - 16 years at diagnosis 

Location: New Jersey, USA

Cancer Type: Hodgkin's Lymphoma

Chemo Regimen: ABVD

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Alayna

 

I was diagnosed with Hodgkin’s Lymphoma, Stage 2 in September 2021 when I was just 17 years old. My doctor informed me about Paxman and scalp cooling when I was diagnosed and I decided to give it a go.

 

Alayna - 17 years at diagnosis 

Location: New Jersey, USA

Cancer Type: Hodgkin's Lymphoma

Chemo Regimen: ABVD

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